What PANDAS/PANS is {and what it isn't} #pandaspans #specialneeds #autoimmune

What PANDAS/PANS is {and what is isn’t}

Last year, our oldest son, Jack, was diagnosed with PANDAS/PANS. Over the past year, we’ve learned a lot about the brain, the body, and the impact an autoimmune disorder can have on both in the life of a young child.

After a year of being quiet about what our family has gone through, I feel both compelled and called now to share our story. If Jack’s journey and our experience as a family has the ability to impact even one family who is suffering or who knows someone who is suffering from this disorder, I want to help. And the best way I can do that is by being honest about what we’ve gone through and are continuing to go through with our sweet Jack.

As I mentioned in this post, there are aspects of Jack’s journey that will be off limits. With that said, there are many things I can and will share to help bring awareness to this condition and the estimated 1 in 200 families it affects in our country every year.

Because there is ongoing research into this new (and, in some cases, unrecognized) condition, I want to share with you what is commonly understood about PANDAS/PANS. So, I’ve broken this post down into what PANDAS/PANS is and what it isn’t. First, we’ll start with what it is.

18 Ways You Can Help A Special Needs Family in 2018

Happy New Year, friend! I feel so blessed, excited, and appreciative that you are here. Whether you are a special needs parent or love someone with special needs, you’ve come to the right place and I’m thrilled to have you! I wanted to start off the year by opening up conversation about a subject that is near and dear to my heart. Have you ever thought: “I want to help a special needs family friend, but I don’t know how”? Look no further! Today, I’m offering some simple, but life changing ways you can help a special needs family in your life this year.

Your questions answered! How we’re {really} doing, what life with PANDAS/PANS is like, and more

Many of you asked how we’re doing in the midst of PANDAS/PANS, life, and more.

In the wake of a challenging year, my answer isn’t easy. But I want to share with you honestly because I know if we’re struggling, other special needs families are, too. And the more honest we are about our joys and our struggles, the more we can help one another.